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Real Stories from Real Patients with Rare Diseases

Often the best way of accessing support is through the stories of others in a similar situation. We hope these stories not only give you the information you’re looking for but also the reassurance that you’re not alone.

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I decided not to let HAE stop me from doing anything, and that’s how I live today.

HAE Stories - Katherine

HAE

Katherine

Have you got a story?

Everyone living with a rare disease has a story to tell. Whether it affects you directly or you’re a friend, colleague, family member or healthcare professional, we all have our own challenges and ways with dealing with them.

Tell us your story

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