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RARE DISEASES

Chronic hypoparathyroidism

Find out more about chronic hypoparathyroidism, from a person living with it.

“I feel relieved to be able to share and discuss my experiences of living with chronic hypoparathyroidism. It makes me feel like I’m not alone; I feel connected.” Mari

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What is chronic hypoparathyroidism?

We would like to share with you the impact that chronic hypoparathyroidism has on people living with it. Chronic hypoparathyroidism is a rare disease that occurs when there is little to no parathyroid hormone (PTH) in the body.(1) PTH is produced in the parathyroid glands of the neck, and it plays an important role in maintaining the balance of calcium and phosphate in the body.(9)

In the graph below, you can see how PTH works in the body.(10)

r2a-pth-v2

If the body is not able to produce enough PTH, the level of calcium in the blood may be too low and the level of phosphate in the blood too high.(9-10)

What are the signs and symptoms of chronic hypoparathyroidism?

Chronic hypoparathyroidism can cause multiple symptoms(7) and can potentially cause a variety of long-term complications.(1,8) See below for a list of some symptoms experienced by people living with hypoparathyroidism:(7)

r2a-symptoms-v3

How is chronic hypoparathyroidism diagnosed?

In most cases, people with chronic hypoparathyroidism have had thyroid surgery (approximately 75% of cases).(5,7,9)

If a person has had thyroid surgery, the doctor may test his or her blood calcium and PTH levels after surgery. If the person’s levels have not returned to normal after 6 months, he or she may have chronic hypoparathyroidism.(1,9)

Other less common causes of chronic hypoparathyroidism, such as autoimmune disorders, genetic causes, consequences of radiation therapy or unknown causes,(1,9) may require additional screening to diagnose.(1)

What is it like to live with chronic hypoparathyroidism?

Not many people know about chronic hypoparathyroidism, which can make those living with the condition feel isolated and alone (11). To meet some of the patients living with chronic hypoparathyroidism and understand the reality of experiencing the multiple symptoms associated with this rare disease, click on Hypoparastories.

Find out more about chronic hypoparathyroidism

C-ANPROM/INT//1215 September 2017
C-ANPROM/INT//1339 September 2017

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Want to learn more about Fabry disease? Please visit:

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Help us raise awareness of Hypoparathyroidism!

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“Never be afraid of asking for help. If you are struggling with your symptoms, ask your doctor for a blood test. Educate yourself, find an informed specialist and work together to better manage your Hypopara.”

Fiona

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