Because over the years, and from all our interviews, chats, emails and phone calls with those living with Fabry disease, Gaucher disease, hereditary angioedema, Hunter syndrome and short bowel syndrome, we saw how important it was for people to tell their story. To feel they’re not alone. To share their experiences in order to help, support and advise others going through the same challenges. We hope Rare2Aware.com does all this and more for you. If you want to get involved, we would love to hear your story.