We’ve seen and heard some incredible stories of bravery, of coming together, of optimism, happiness and overcoming the seemingly impossible.
So what about you? What’s your story? We would love to hear about your life with a rare disease, from your very first symptom to how you live your life now. If you need some inspiration, have a look at some stories that patients have already shared.
Or tell us about one small part of your life – what do you get up to day-to-day? Do you have any top tips you would like to share? Are you a parent of a child diagnosed with something rare and want to tell others about your experience?
Just fill out the form below with a few details, give us a brief description of your story and someone from our team will be in touch.
The details you provide will be used solely for the purposes of handling your enquiry. Shire does not sell customer information to other companies.