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Events in the Rare Disease World

These events exist to raise awareness and advance understanding of rare diseases. So, see what’s coming up and how you can get involved because by working together we can share knowledge and really change lives.

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15th May 2017 – MPS Awareness Day MPS Day Logo
International MPS Awareness day is taking off on 15th May. Get on board!
Visit MPS Day


16th May 2017 – HAE Day HAE Day 2017
It’s HAE Day! Join us in raising awareness of this rare disease.
Learn more about HAE Day


16th – 18th May 2017 – European Stroke Organisation ESOC LogoConference (ESOC)
These few days will see the world leaders in stroke research come together to share the latest developments and learnings.
Visit ESOC


3rd – 6th June 2017 – ERA – EDTA Congress (for HCPs only)ERA EDTA Logo
The ERA – EDTA is an association of European kidney specialists and this year their congress is taking place in Madrid. Their website has all you need to know:
Visit ERA – EDTA Congress


16th – 17th June – Gaucher Expert SummitGES Logo
The Gaucher Expert Summit is back! Check out the success of the previous event on the website:
Visit Gaucher Expert Summit


24th – 27th June 2017 – European Academy of Neurology (EAN) (for HCPs only)EAN Logo
6000 neurologists from all over the world meet at this congress to learn and share knowledge of neurological diseases. Visit their website for more information:
Visit EAN Congress


24th – 28th June 2017 – International Federation of Oto-Rhino-Laryngological Societies (IFOS) World Congress (for HCPs only)IFOS Logo
This exceptional congress covers medical issues concerning the ears, nose and throat. Get more information by clicking the link below:
Visit IFOS 2017


28th June – 1st July 2017 – International Small Bowel Transplant Symposium (ISBTS)CIRTA Logo
New York is the location for this year’s ISBTS. Get the details on their official website:
Visit CIRTA 2017


No events at present.


26th – 30th August 2017 – European Society of Cardiology (ESC) Congress (for HCPs only)ESC Logo
With over 500 expert sessions, the ESC hosts the world’s largest cardiovascular congress. Get more information now:
Visit ESC Congress


5th – 8th September 2017 – International Congress of Inborn Errors of Metabolism (ICIEM) (for HCPs only)ICIEM 2017
The ICIEM returns for the 13th time. Get all the information you need on their official website:
Visit ICIEM 2017


8th – 9th September 2017 – ASH Meeting on Hematologic MalignanciesASH Logo
This meeting will feature the top experts in haematology. Take a look at the website to see the planned programme for the event:
Visit ASH Meeting


1st October 2017 – International Gaucher Day Gaucher Day 2017
This is one day committed to raising awareness of Gaucher disease. See how you can join us:
Learn more about International Gaucher Day

17th – 21st October 2017 – American Society of Human Genetics (ASHG) Annual MeetingASHG Logo
The ASHG meeting features presentations by the world’s leading geneticists. Visit their website for more information:
Visit ASHG Meeting


28th October – 1st November 2017 – United European Gastronenterology (UEG) WeekUEG Logo
The 25th UEG Week is here, the leading event for the latest in gastroenterology and liver research. Stay updated on their website:
Visit UEG Week


November – National Family Caregivers MonthCAN Logo
Celebrated each November, this is a whole month for recognising and honouring family caregivers everywhere. Visit the Caregiver Action Network for more info:
Visit Caregiver Action Network


3rd December 2017 – International Day of People with Disability (IDPwD)People with Disability Logo
Held on 3rd December every year, this day aims to increase public awareness, understanding and acceptance of people with disability. Find out how you can get involved at:
Visit IDPwD 2017



No events at present


28th February 2018 – Rare Disease DayRare Disease Day
It’s Rare Disease Day! Take a look at what we’ve been up to and find out how you can join in
Learn more about Rare Disease Day


No events at present.


1st – 30th April 2018 – Fabry Awareness MonthFabry Logo
Every year, the whole of April is dedicated to raising awareness of Fabry Disease:
Learn more about Fabry Awareness Month

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