This website is intended for audiences outside the United States.

About Rare2Aware

Rare2Aware has been conceived, developed and funded by Shire International GmbH, the global biotechnology company dedicated to serving those living with rare diseases and other highly specialised conditions.

About Rare2Aware

We want to create an open, inclusive website everyone can belong to. An easy-to-access environment where we can reach out and connect to more people all over the world who are living with a rare disease.

Because over the years, and from all our interviews, chats, emails and phone calls with those living with Fabry disease, Gaucher disease, hereditary angioedema, Hunter syndrome and short bowel syndrome, we saw how important it was for people to tell their story. To feel they’re not alone. To share their experiences in order to help, support and advise others going through the same challenges. We hope does all this and more for you. If you want to get involved, we would love to hear your story.

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